Tuesday, August 16, 2011

This is why I'm here...

The last few weeks, I have questioned my purpose for advocating for RA (other autoimmune diseases.)

I was really confused and somewhat frustrated with trying to educate myself so I can pass along the information to others:
Am I being redundant? Is this information relevant to other RA patients or anyone? Does anyone really care what I post?!

I was ready to throw in the towel, *delete* *delete* delete*

Then something happened, logging on to Twitter this week I noticed a fellow spoonie having a difficult time. I know we all have struggles dealing with life in general, throwing chronic illness into the mix and you have an emotional, psychical, financial, spiritual tsunami!

I could go into my personal woes but this isn't about me, this is about 'us'...the community of people somewhat slighted by the rest of the world in one way or another. In this isolated community, we tend to lean on each other for support. Most of us have never met face to face and don't know each other beyond screen names/ Facebook profiles but thankfully there is a little saying, "We can't choose our family, but we can choose our friends."

So here we are, an elite group of people, trying to lift one another up! It is important to pass along information to people just learning about their conditions, but it's vital to be around for emotional support.

A quote by Mother Teresa sums it up: "We cannot do great things on this Earth, only small things with great love."

Stay strong, friends!


  1. I love that quote also. Another favorite of mine and very applicable right now...Unless someone like you cares a whole awful lot, nothing is going to get better. It's not. ~Dr. Seuss Keep up the great work!

  2. I like that quote too! Thank you! xo

  3. Is there a way to subscribe to your blog?

  4. I think I can set up that feature. Thanks for the inquiry!

  5. Thanks SpoonieChic for the wonderful expressions of RA camaraderie you share on Twitter, as well as your blog. :)